bientot: flapping crane (Default)
[personal profile] bientot
Sept. 19 - 25 is Charcot-Marie-Tooth Awareness Week so it behooves me to do my little bit to raise awareness. CMT is a hereditary peripheral neuropathy disease associated with a number of different genetic markers and different levels of impact, even in the same family. It's one of those things where there's no treatment so the only real advantage of diagnosis is having a name for what's happening, but there is research being conducted so that might change at some point. Meanwhile, for more information please see the official CMT Association website.

Oh, yeah - my brother and I are both affected. And since I see that I'm the only one on DW who lists this as an interest, boosting awareness is probably something I should be doing! :)

Date: 2010-09-21 10:35 am (UTC)
From: [personal profile] whitecollarfan
Hi - your link isn't working - when creating a link in html code you need to include the http:// in front of the www.

wow

Date: 2010-09-25 08:00 pm (UTC)
sherrold: Rse from Dr Who, smiling and full of love (Default)
From: [personal profile] sherrold
according to wikipedia, it's the most common genetic neurological problem of them all, and I'd never heard of it! I'm sorry to hear that you're affected.

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bientot

March 2011

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